This weekend I was honored to be part of the 10th annual Down Syndrome Awareness Walk in Chippewa Falls, Wisconsin. The Down Syndrome Association of Wisconsin-Chippewa Valley advocates for a worthwhile cause and is a wonderful organization. I have supported multiple causes throughout my life. Among the organizations related to celebrating all abilities, I have been an award presenter for Special Olympics, a judges coordinator and emcee for the Miss Amazing pageant and am so looking forward to participating in Best Buddies events around the state as an ambassador as part of the Miss Wisconsin USA organization.
But even more so, I have been involved in awareness events and walks since I could walk. My mother was a news anchor and was often asked to participate, so non-profit events were a true family affair. I am blessed to have been taught the importance of community involvement and giving back. We did it all, Alzheimer’s awareness, heart disease awareness, Epilepsy awareness, mental health awareness, and breast cancer awareness. The latter came to be when my Nana was diagnosed with stage four breast cancer when I was 12 years old. She wanted to attend events and we all got involved. Something she used to say has stuck with me all of these years. We would all get dressed up in our pink shirts with our ribbons and pins and head to an ‘awareness’ event and she was bald and sick and going through chemo and would say….”AWARENESS, oh I am aware, I’m aware of what breast cancer is and what it does and what it means.” and she was, we all were. For my family it meant we would eventually lose our matriarch.
So when I go to an awareness event that is always top of mind. The families who attend, who live every day with ‘awareness’, choose to come to help the rest of the world understand, even if it is just for one day, for a few hours in a park, to share what it means. It is a time for them to come together, be together, to laugh and sometimes cry. My heart is full this Monday morning knowing that showing up with a crown and banner didn’t actually make anyone more ‘aware’ of the ups and downs these families face every moment of every day, but it did put a smile on a lot of faces. They are aware, and I am more aware and more educated than I was yesterday.
This will be my favorite part of being Miss Wisconsin USA. Please invite me to your ‘awareness’ event, I would be honored to be a part of something bigger.
Dream Big, Skylar